Ethics & Governance

How we protect what families trust us with.

A plain-language view of consent, privacy, research access, ownership, and deletion.

Ethics

Where we are right now

Translate Silence launched in 2026. We are pursuing formal IRB registration. Last updated: June 16, 2026.

→No observation data is shared without explicit opt-in.
→Research datasets are de-identified before release.
→Partnerships are reviewed for contributor wellbeing.
→Contributors can export or delete their data at any time.

Ethics

The Data Adapter relationship

The Data Adapter built and operates Translate Silence. Translate Silence is its primary initiative.

THEDATAADAPTER.COM

Ethics

How de-identification works

Before observations are used for research, identifying details are removed.

→Names and nicknames.
→Locations below state level.
→School, clinic, and provider names.
→Dates of birth and household identifiers.

We do not sell this data. We do not use it for advertising. We do not share it with insurance companies.

These commitments are reflected in our Terms of Service.

Ethics

Who can access research data

Researchers apply through a review process. Access is purpose-limited and never includes individual household records.

→Institutional affiliation and IRB status.
→Research purpose and methodology.
→Data security practices.
→Benefit to contributing communities.

Ethics

Rights of the person being observed

The person being documented has rights, even if they cannot exercise them directly.

→Records are private by default.
→Minors can request access when they turn 18.
→Adults can request access at any time.
→Profiles can be deleted completely.

Ethics

If ownership ever changes

If The Data Adapter or Translate Silence is acquired, merged, or materially changes ownership, contributor protections still apply.

→Contributor data does not transfer without re-consent.
→Contributors receive at least 90 days notice.
→Export and deletion remain available during that window.

Read the Terms clause.

Ethics

Change log

This page was last updated: June 16, 2026.

Previous versions: archive coming before public launch.

Ethics

Want to leave?

You can export first or request permanent deletion. No 30-day delay. No recovery period. No follow-up emails asking you to reconsider.

DELETE MY ACCOUNTEXPORT EVERYTHING

If you export first, your data arrives as a PDF and CSV within 24 hours.